Info on Arnold-Chiari I, Idiopathic Syringomyelia, and Idiopathic Scoliosis: Causes and Insights

We are excited to celebrate the 15th anniversary of the Institut Chiari & Syringomyelia & Scoliosis de Barcelona (ICSEB) . During these 15 years, we have dedicated our efforts to improve the health of individuals suffering from Arnold-Chiari I , idiopathic Syringomyelia and idiopathic Scoliosis and other diseases included in Filum Disease .   Since the foundation of the ICSEB in 2008, we have been pioneers in the diagnosis and treatment of these conditions. We have applied the protocols of the Filum System® method in more than 3000 first consultations and more than 2100 interventions. Patients from 85 countries on five continents have been able to benefit from the sectioning of the filum terminale by means of a minimally invasive surgical technique, which makes it possible to halt the evolution of the pathology, eliminating its cause – the traction that a congenitally tense filum terminale exerts on the entire nervous system.   Each of the patients we hav...

        ICSEB implements new measures to guarantee safe medical care due to COVID-19 The new measures come according to the extraordinary actions to restrict mobility and social contact established by the different national and international health authorities, together with the indications of the Management of the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB). New and reinforced safety, prevention and hygiene conditions have been implemented to guarantee the protection of our patients’ and staff’s health, as well as public health. We provide medical care to patients from different parts of the world at ICSEB, and we have the obligation to inform each of them of the new measures to be taken into account to guarantee their safety and reduce the risk of transmission of COVID-19. Our administrative team, made up of contact personnel who communicate in more than 16 languages, provides all the pertinent information to schedule m...

We are grateful to share yet another patient story with you today. ICSEB patient Elizabeth from Philadelphia tells us how for a long time she was receiving diagnoses related to anxiety, depression and fibromyalgia before being diagnosed with Syringomyelia in 2015. Hear more from her in this video, where she explains how she found the Institut Chiari & Syringomyelia & Scoliosis of Barcelona and how the treatment helped her situation.  

This patient travelled from the United States of America to Spain for treatment at the Institut Chiari & Siringomielia & Escoliosis de Barcelona for treatment according to the Filum System® . The minimally invasive Sectioning of the filum terminale was applied in September 2016 for her diagnosis Neuro-Cranio-Vertebral Syndrome, Filum Disease , Arnold-Chiari Syndrome Type I , idiopathic Syringomyelia and idiopathic Scoliosis . Now, a little more than two years after the procedure, she generously shares her experience with the recovery process. Thank you, Patricia! "It has been over 2 years since my surger y. I wanted to wait a long time to give feedback. This is my experience.

We are very happy and grateful to be able to share our young patient Taylor's account of her experience today.

Award Ceremony Past Friday, 16 March 2018, at Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB)’s main offices, Ms. Eva Subirá Jiménez, Director of AENOR Catalunya (Spanish Association for Standardization and Certification), officially delivered the Quality Management System Certification based on the UNE-EN ISO 9001:2015 standard*, for the following activities: Research, diagnosis and treatment of Filum Disease Diagnosis and treatment of neurosurgical diseases

Today we would like to share yet another wonderful patient story. Rafael, a young patient affected by the Neuro-Cranio-Vertebral Syndrome, Filum Disease with an intramedullary cyst (idiopathic Syringomyelia) had to rely on a wheelchair to get around when he arrived at the Institut Chiari & Siringomielia & Escoliosis de Barcelona for his first consultation. After receiving the confirmation that he was a candidate for the Filum System® health method, he underwent the minimally invasive surgical procedure that is part of this method (the sectioning of teh filum terminale). In this video you can follow his post-op course during the first weeks after the procedure with short clips recorded by his family and at the Institute. Here in Barcelona we are very happy for Rafael and his family and very grateful to be able to share these images. We wish him the best for his recovery and rehabilitation and hope to continue seeing these great results.

Many of the patients who have been diagnosed with the Arnold-Chiari Syndrome, idiopathic Syringomyelia, idiopathic Scoliosis and/or other associated conditions, who elected the Filum System® health method as their treatment of choice, show great kindness and generosity in sharing their experiences in written and video accounts for other patients in similar situations to consider and to raise awareness around the globe.  Meet some of these greathearted individuals and find out about their stories. Nicolas is today eight year old boy who underwent Sectioning of the Filum terminale procedure at a very young age, with only three years. His parents describe how they first felt about the diagnosis and travelling abroad for treatment and share MR imaging from check ups over the years. The most recent MRI reading indicates: ”currently an obvious decrease of the small hydro-syringomyelic cavity between C6and T1 can is observed”. Read the full account and see the ...

Today we would like to share with share with you a video testimonial from a patient diagnosed with Neuro-Cranio-Vertebral Syndrome. Filum Disease. Descent of the cerebellar tonsils (DCT. Arnold-Chiari Syndrome I), recorded twenty days after her surgery according to the Filum System® . Our lovely patient is from Brazil and tells us her experience in Portuguese, but you can find a summary in English below.    Surgery date: June 2016   Miss De Oliveira tells us that she was not able top lay and run like other children when she was little because she suffered from pain and breathing difficulties. Her situation got worse in her teens as the pain increased in the head and body, together with fatigue and tremors in legs and eyes. There was a deterioration of the symptoms at the age of seventeen and she saw many physicians of different specialties over the next two years and received different diagnoses, from sinusitis to...

The Institut Chiari & Siringomielia & Escoliosis de Barcelona team wishes you happy holidays and a great start into the New Year 2017! We hope to welcome you as readers again in the next year.  https://vimeo.com/195433856

We are pleased to announce that the director of Institut Chiari & Siringomielia & Escoliosis de Barcelona , Dr. Royo Salvador, has been invited to collaborate with the association Worldwide Syringomyelia & Chiari Task Force and to join the medical board of this association that is based in the United States. It aims to educate professionals and patients about the diagnoses that included in the organization’s name. At the same time, it is promoting a study of these diseases at international level under the auspices of the Food and Drug Administration (FDA) and the National Organization for Rare Disorders in North America. We are happy to share this collaboration and we hope it will be bring fruitful and lasting results for the benefit of patients throughout the world. The invitation letter sent to Dr. Royo by the association: http://institutchiaribcn.com/commons//pdf/communication-letters/Letter-WSCTF-ICSEB.pdf

Since June 2015, the Institut Chiari & Siringomielia & Escoliosis de Barcelona counts on the experience of Dr Horia Salca Calín. He is the new member of the medical-surgical team of ICSEB, a neurosurgeon trained in all conventional techniques of neurosurgery and is accredited for the implementation of the Filum System ® Surgery method . Also, he is the part of the Department of Research and Development of the Institut.   He graduated in Medicine and Surgery in 1990 from the University of Medicine and Pharmacy (UMF) of Târgu Mureș and specialized in neurosurgery in 1996 from UMF, Bucharest in Romania.            Dr Salca worked in university hospitals with high intensity care activity in Bucharest and Constanza. He did his Specialty Fellowship in Amsterdam (Netherlands) and London (UK) in 1995 and 1996 respectively and achieved the Advanced Specialty Research Diploma (Diplôme d’études avancées de specializati...

I would like to know if an Arnold Chiari I Syndrome can be operated on in an initial phase / I am being told that the descent of my cerebellar tonsils is not a Arnold Chiari I Syndrome, because it is of few millimetres, and that it does not need to be operated.  Do you agree with this indication? As soon as a descent of the cerebellar tonsils is detected, even if it is mild, our specialists study the complementary magnetic resonance scans, and/or others, in order to confirm whether this is due, or not, to a mechanical traction and identify the cause that brings it about. Example of a mild descent of the cerebellar tonsils.   If the existence of a mechanical traction of the spinal cord is confirmed, and the cause is an excessively tight filum terminale ( Filum Disease ), the SFT procedure is indicated as soon as possible in order to eliminate the traction that is traumatizing the spinal cord. For more Q & A vi sit our website .

The Institut Chiari & Siringomielia& Escoliosis de Barcelona (ICSEB) works with patients from all over the world. Since its foundation, a team of international patient care was built in order to support our medical team in communicating with patients of any language or nationality. With the developments in the last 50 years in the field of Medical Anthropology, a sub-field of Cultural and Social Anthropology, a theory has been developed at international level. This theory deals with the social processes and the cultural representations of health, illness and healthcare or assistance practices related to it. Thanks to this, we know how important the attention to these aspects is, especially in the healthcare sector, as well as the presence of a professional figure to mediate between the physician and the patient from a different culture in the work ambit.

Are you curious about the Institut Chiari de Barcelona and its staff? Take a look at this short presentation video. We hope you enjoy it and look forward to your comments. 

The 2 nd International Filum System ® Sanitary Course will be taking place in Barcelona, Spain, between 10 and 14 November 2014, presented by the “ Filum Academy Barcelona ® ” and the   “Chiari & Scoliosis & Syringomyelia Foundation” (CSSF), with the cooperation of the “Institut Chiari & Siringomielia & Escoliosis de Barcelona” .

  Today we would like to share a statement by Dr Royo Salvador regarding the advances in the application of the Filum System ® and the medical partnerships that are being formed in order to make the method available to patients on an increasingly broader level.   "Throughout my life as a researcher, I often wondered about the characteristics that would be required of the specialists that would join the Project and make their own the scientific, technical as well as care-related advances involved in a method such as the Filum System ®. In essence, it was absolutely necessary to establish the criteria to define good travel companions.

Dear students,   In the name of everyone at the FILUM ACADEMY BARCELONA®, we would like to welcome you all dearly to this academic year 2014-2015. Since ancient times, mankind has focused on dealing with symptoms of the most varied diseases. Centuries later we see that many of the great names in medicine, those that really left a mark in history, took a step further by interpreting the symptoms in order to find their causes.

The Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) is a highly specialised private centre that is concerned with offering advanced solutions on medical and neurosurgical level for brain and spine diseases. The Institut first comes into existence in Barcelona, Spain, in 2007, and is born out of the need of Miguel B. Royo Salvador, MD PhD, director and founder of the “Institut Neurologic de Barcelona”, for a space where he could dedicate himself to the three pathologies from that the centre takes its name: Arnold Chiari Syndrome I, Idiopathic Syringomyelia and Idiopathic Scoliosis.