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Rare Disease Day - 28 February 2019 - Association AI.SAC.SI.SCO

Today, 28 February 2019, the 12 th edition of Rare Disease Day is celebrated worldwide. This year’s theme revolves around “ bridging health and social care ”. AI.SAC.SI.SCO. (Associazione Internazionale Sindrome d’Arnold-Chiari, Siringomielia e Scoliosi – Arnold-Chiari Syndrome, Idiopathic Syringomyelia and Idiopathic Scoliosis International Association ): ·    Supports the Chiari & Scoliosis & Syringomyelia Foundation , which promotes the development of scientific research projects; ·    Bears the logo of the Institut Chiari & Siringomielia & Escoliosis de Barcelona ( ICSEB) , as its members are patients who underwent the sectioning of the Filum Terminale according to the Filum System ® health method . This protocolized method has been designed for the diagnosis, treatment and care of patients with conditions that are considered to be rare, mainly the Arnold-Chiari Syndrome Type I, Idiopathic Syringomyelia and all c...
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The struggle of French patients for the recognition of the Filum System® treatment.

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Today we are sharing some news from the Communications Department of the Institut Chiari & Siringomielia &  de Barcelona with information regarding the activism of patients in France to fight for awareness of diseases they are affected by, recognition of the indicated treatment and reimboursement of the treatment cost by the public services.
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