Info on Arnold-Chiari I, Idiopathic Syringomyelia, and Idiopathic Scoliosis: Causes and Insights

We are very happy and grateful to be able to share our young patient Taylor's account of her experience today.

We are happy to be able to celebrate our 10th anniversary and strive to continue to share our knowledge and experience regarding the Filum Disease to the benefit of patients everywhere. We want to thank everyone who put their trust in the Filum System® method and in our Institute.  Thank you for your lovely messages! Greetings from our patients Greetings from collaborators    Greetings from Patient Associations    

Today we would like to share with share with you a video testimonial from a patient diagnosed with Neuro-Cranio-Vertebral Syndrome. Filum Disease. Descent of the cerebellar tonsils (DCT. Arnold-Chiari Syndrome I), recorded twenty days after her surgery according to the Filum System® . Our lovely patient is from Brazil and tells us her experience in Portuguese, but you can find a summary in English below.    Surgery date: June 2016   Miss De Oliveira tells us that she was not able top lay and run like other children when she was little because she suffered from pain and breathing difficulties. Her situation got worse in her teens as the pain increased in the head and body, together with fatigue and tremors in legs and eyes. There was a deterioration of the symptoms at the age of seventeen and she saw many physicians of different specialties over the next two years and received different diagnoses, from sinusitis to...

We will be addressing some recurring questions among our patients in today's post.    What should you do when your doctor indicates a surgery? Surgical indication must be the result of a detailed study of the case, which takes into consideration all factors, like possible diagnosis and treatments, age, quality of life, expectations, etc. When is the application of Filum System® (FS ® ) surgical protocol indicated for the Filum Disease? As soon as possible after the disease has been diagnosed, to eliminate its cause and prevent the pathology from developing further. The diagnosis Filum Disease means that there is a progressive physical and especially a neurological deterioration ongoing.

I would like to know if an Arnold Chiari I Syndrome can be operated on in an initial phase / I am being told that the descent of my cerebellar tonsils is not a Arnold Chiari I Syndrome, because it is of few millimetres, and that it does not need to be operated.  Do you agree with this indication? As soon as a descent of the cerebellar tonsils is detected, even if it is mild, our specialists study the complementary magnetic resonance scans, and/or others, in order to confirm whether this is due, or not, to a mechanical traction and identify the cause that brings it about. Example of a mild descent of the cerebellar tonsils.   If the existence of a mechanical traction of the spinal cord is confirmed, and the cause is an excessively tight filum terminale ( Filum Disease ), the SFT procedure is indicated as soon as possible in order to eliminate the traction that is traumatizing the spinal cord. For more Q & A vi sit our website .

In today’s post we would like to introduce the different findings, fruit of many years of research and medical practice, which constitute the foundation of our current diagnostic and treatment method.  Dr. Royo Salvador’s research and studies started out in the seventies of the last century, in co-operation with the faculty of medicine of the Autonomous University Barcelona . Part of this research effort was concerned with diseases that are/were considered to be of unknown cause, as are idiopathic Syringomyelia, idiopathic Scoliosis and the Arnold Chiari I Syndrome (regarding the latter different ethiopathogenic theories were proposed at the time, we intent to discuss those further along on this blog) and its outcome are scientific findings that form the practical and theoretical basis to our Filum System ®  method and our Institut’s activity in general.

The Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) is a highly specialised private centre that is concerned with offering advanced solutions on medical and neurosurgical level for brain and spine diseases. The Institut first comes into existence in Barcelona, Spain, in 2007, and is born out of the need of Miguel B. Royo Salvador, MD PhD, director and founder of the “Institut Neurologic de Barcelona”, for a space where he could dedicate himself to the three pathologies from that the centre takes its name: Arnold Chiari Syndrome I, Idiopathic Syringomyelia and Idiopathic Scoliosis.