Info on Arnold-Chiari I, Idiopathic Syringomyelia, and Idiopathic Scoliosis: Causes and Insights

        ICSEB implements new measures to guarantee safe medical care due to COVID-19 The new measures come according to the extraordinary actions to restrict mobility and social contact established by the different national and international health authorities, together with the indications of the Management of the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB). New and reinforced safety, prevention and hygiene conditions have been implemented to guarantee the protection of our patients’ and staff’s health, as well as public health. We provide medical care to patients from different parts of the world at ICSEB, and we have the obligation to inform each of them of the new measures to be taken into account to guarantee their safety and reduce the risk of transmission of COVID-19. Our administrative team, made up of contact personnel who communicate in more than 16 languages, provides all the pertinent information to schedule m...

Today, 28 February 2019, the 12 th edition of Rare Disease Day is celebrated worldwide. This year’s theme revolves around “ bridging health and social care ”. AI.SAC.SI.SCO. (Associazione Internazionale Sindrome d’Arnold-Chiari, Siringomielia e Scoliosi – Arnold-Chiari Syndrome, Idiopathic Syringomyelia and Idiopathic Scoliosis International Association ): ·    Supports the Chiari & Scoliosis & Syringomyelia Foundation , which promotes the development of scientific research projects; ·    Bears the logo of the Institut Chiari & Siringomielia & Escoliosis de Barcelona ( ICSEB) , as its members are patients who underwent the sectioning of the Filum Terminale according to the Filum System ® health method . This protocolized method has been designed for the diagnosis, treatment and care of patients with conditions that are considered to be rare, mainly the Arnold-Chiari Syndrome Type I, Idiopathic Syringomyelia and all c...

This patient travelled from the United States of America to Spain for treatment at the Institut Chiari & Siringomielia & Escoliosis de Barcelona for treatment according to the Filum System® . The minimally invasive Sectioning of the filum terminale was applied in September 2016 for her diagnosis Neuro-Cranio-Vertebral Syndrome, Filum Disease , Arnold-Chiari Syndrome Type I , idiopathic Syringomyelia and idiopathic Scoliosis . Now, a little more than two years after the procedure, she generously shares her experience with the recovery process. Thank you, Patricia! "It has been over 2 years since my surger y. I wanted to wait a long time to give feedback. This is my experience.

The patient had mobility problems in her lower extremities. She didn’t have strength in her legs to stand and was using a wheelchair. Diagnosed with the Neuro-Cranio-Vertebral Syndrome. Filum disease. Descent of the Cerebellar tonsils (Arnold-Chiari Syndrome Type I). Idiopathic Syringomyelia. Multiple disk disease. Odontoid retroflexion, she went the minimally invasive procedure of the sectioning of the filum terminale according to the Filum System® at the Institut Chiari & Siringomielia & Escoliosis de Barcelona in July 2018. You can see recordings from the pre-op day, one day after the procedure and one week post-op.  

We are very pleased and grateful to be able to share Mireille's story today; the video was recorded in February 2018. The patient was diagnosed with Neuro-Cranio-Vertebral Syndrome . Filum Disease . Descent of the Cerebellar Tonsils (Arnold-Chiari Syndrome Type I). Idiopathic Syringomyelia and Multiple Disc Disease and underwent the surgical procedure at the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) in October 2016. 

We are very happy and grateful to be able to share our young patient Taylor's account of her experience today.

On June 12, 2018, the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) celebrated its 10 th anniversary. In this interview, founder and director, Dr. Miguel B. Royo Salvador , explains the fundamental stages through which the Institut has passed during its 10 years of excellence; which have led ICSEB to become a centre of international reference for the diagnosis, treatment and follow up of the Filum Disease.  – Good morning Dr. Royo Salvador. –  Good morning –  On the occasion of the 10 th anniversary of the Institut Chiari de Barcelona, I will ask you some questions. –  My pleasure –  For this occasion, the motto “10 years of excellence” was chosen. What do you want to express with this phrase? –  We want to highlight the work we have done since the inauguration of the Institut Chiari de Barcelona, with the objective of applying new medical concepts, which we have proposed through previous research. It...

Cícera dos Santos tells the story of her sister, Maria do Socorro, diagnosed with Arnold-Chiari Syndrome Type I six years ago and operated by means of suboccipital craniotomy (SOC, decompression surgery) four years ago. After the surgery, the patient coninued to get worse: intensification of the pain, breathing difficulty, loss of strength in the upper and lower extremities and many other symptoms. Due to the deterioration of her clinic, she had to start using a wheelchair to move around since August 2017. In addition, Maria do Socorro lost her voice (*) in April of last year. For this reasons it is her sister, Cícera, who is telling her story in this video. Cícera explains that, after the craniotomy, her sister had started investigating about her pathology on the Internet and that she had found the ICSEB and it was like seeing the light at the end of the tunnel. From that moment, both of them started a big group effort to make the trip to Barcelona viable. ...

Many of the patients who have been diagnosed with the Arnold-Chiari Syndrome, idiopathic Syringomyelia, idiopathic Scoliosis and/or other associated conditions, who elected the Filum System® health method as their treatment of choice, show great kindness and generosity in sharing their experiences in written and video accounts for other patients in similar situations to consider and to raise awareness around the globe.  Meet some of these greathearted individuals and find out about their stories. Nicolas is today eight year old boy who underwent Sectioning of the Filum terminale procedure at a very young age, with only three years. His parents describe how they first felt about the diagnosis and travelling abroad for treatment and share MR imaging from check ups over the years. The most recent MRI reading indicates: ”currently an obvious decrease of the small hydro-syringomyelic cavity between C6and T1 can is observed”. Read the full account and see the ...

Almost a year ago now, Dr. Miguel B. Royo-Salvador, MD, PhD, Director of the Institut Chiari & Siringomielia & Escoliosis de Barcelona and President of the Chiari & Scoliosis  & Syringomyelia Foundation , published a bibliographic review on the surgical technique of the foramen magnum decompression in two of the conditions this blog is mainly concerned with, the Arnold-Chiari Syndrome Type I and idiopathic Syringomyelia in the online edition of the Rare Disease Report . Today we would like to introduce this text here on the blog, hoping that you will find it of interest. He discusses the existen debate in the medical world on making the accurate diagnosis and the existence of different types of the Arnold-Chiari Syndrome and the different treatment approaches for this condition and for the often associated idiopathic Syringomyelia. He analyzes what is currently the standard treatment, the foramen magnum decompression, with regards to the associated risks and ...

With the occasion of the release of the renewed Chiari & Scoliosis & Syringomyelia Foundation website, we would like to share this letter from the organization's president Dr. Miguel B. Royo-Salvador. My research quest initiated in the mid-seventies, it focused mainly on the cause of idiopathic Syringomyelia, followed by that of the Arnold-Chiari Syndrome Type I and later, on that of idiopathic Scoliosis. I reached the conclusion that the origin of these conditions, and that of many other associated ones, was an abnormal traction of the spinal cord brought about by a congenitally tenser than usual filum terminale.    I laid the theoretical foundations for a new treatment for these pathologies by means of the surgical sectioning of the Filum Terminale with my doctoral thesis “Contribution to the Etiology of Syringomyelia” (1992). The outcome was the constitution of the health method Filum System ® , a protocolised system designed for the diagnosis and ...

The Institut Chiari & Siringomielia & Escoliosis de Barcelona team wishes you happy holidays and a great start into the New Year 2017! We hope to welcome you as readers again in the next year.  https://vimeo.com/195433856

Since June 2015, the Institut Chiari & Siringomielia & Escoliosis de Barcelona counts on the experience of Dr Horia Salca Calín. He is the new member of the medical-surgical team of ICSEB, a neurosurgeon trained in all conventional techniques of neurosurgery and is accredited for the implementation of the Filum System ® Surgery method . Also, he is the part of the Department of Research and Development of the Institut.   He graduated in Medicine and Surgery in 1990 from the University of Medicine and Pharmacy (UMF) of Târgu Mureș and specialized in neurosurgery in 1996 from UMF, Bucharest in Romania.            Dr Salca worked in university hospitals with high intensity care activity in Bucharest and Constanza. He did his Specialty Fellowship in Amsterdam (Netherlands) and London (UK) in 1995 and 1996 respectively and achieved the Advanced Specialty Research Diploma (Diplôme d’études avancées de specializati...