Patient Testimonial - Summary of a 2 year post-SFT recovery

This patient travelled from the United States of America to Spain for treatment at the Institut Chiari & Siringomielia & Escoliosis de Barcelona for treatment according to the Filum System®. The minimally invasive Sectioning of the filum terminale was applied in September 2016 for her diagnosis Neuro-Cranio-Vertebral Syndrome, Filum Disease, Arnold-Chiari Syndrome Type I, idiopathic Syringomyelia and idiopathic Scoliosis. Now, a little more than two years after the procedure, she generously shares her experience with the recovery process. Thank you, Patricia!

"It has been over 2 years since my surgery. I wanted to wait a long time to give feedback. This is my experience.

Video - Post-op Progress in Patient with Gait Disturbance

The patient had mobility problems in her lower extremities. She didn’t have strength in her legs to stand and was using a wheelchair.

Diagnosed with the Neuro-Cranio-Vertebral Syndrome. Filum disease. Descent of the Cerebellar tonsils (Arnold-Chiari Syndrome Type I). Idiopathic Syringomyelia. Multiple disk disease. Odontoid retroflexion, she went the minimally invasive procedure of the sectioning of the filum terminale according to the Filum System® at the Institut Chiari & Siringomielia & Escoliosis de Barcelona in July 2018.

You can see recordings from the pre-op day, one day after the procedure and one week post-op.  

The Filum System® Method Halts the Progression of Idiopathic Scoliosis

Dr Royo-Salvador’s theory involves the important discovery of the cause for Scoliosis, which had been considered as being “idiopathic”, as to say “without known cause”, up to the 1990ies. 

Thanks to his etiological explication we now know that Scoliosis can be a clinical manifestation involving an abnormal traction of the spinal cord caused by an excessively tense filum terminale; it is an expression of a Neuro-Cranio-Vertebral Syndrome and/or Filum Disease. (“Siringomielia, escoliosis y malformación de Arnold-Chiari idiopática. Etiología común”, Rev Neurol. 1996 Aug; Volume 24, Nº 132; 937 – 959 Dr Royo-Salvador MB).

Patient Testimonial - One and half years post-op

We are very pleased and grateful to be able to share Mireille's story today; the video was recorded in February 2018. The patient was diagnosed with Neuro-Cranio-Vertebral Syndrome. Filum Disease. Descent of the Cerebellar Tonsils (Arnold-Chiari Syndrome Type I). Idiopathic Syringomyelia and Multiple Disc Disease and underwent the surgical procedure at the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) in October 2016. 

Patient Testimonial - Taylor

We are very happy and grateful to be able to share our young patient Taylor's account of her experience today.

Interview with Dr. Royo-Salvador, Founder and Director of the Institut & Chiari & Siringomielia de Barcelona

On June 12, 2018, the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) celebrated its 10^th anniversary. In this interview, founder and director, Dr. Miguel B. Royo Salvador, explains the fundamental stages through which the Institut has passed during its 10 years of excellence; which have led ICSEB to become a centre of international reference for the diagnosis, treatment and follow up of the Filum Disease.

 – Good morning Dr. Royo Salvador.

–  Good morning

–  On the occasion of the 10^th anniversary of the Institut Chiari de Barcelona, I will ask you some questions.

–  My pleasure

–  For this occasion, the motto “10 years of excellence” was chosen. What do you want to express with this phrase?

–  We want to highlight the work we have done since the inauguration of the Institut Chiari de Barcelona, with the objective of applying new medical concepts, which we have proposed through previous research. It is the concept of a new disease and based on these concepts we have devised new treatments and it is their excellent results that we are celebrating on this 10^th

Congratulations from around the world on ICSEB's 10th anniversary

We are happy to be able to celebrate our 10th anniversary and strive to continue to share our knowledge and experience regarding the Filum Disease to the benefit of patients everywhere.

We want to thank everyone who put their trust in the Filum System® method and in our Institute. 

Thank you for your lovely messages!

Greetings from our patients

Greetings from collaborators 

 

Greetings from Patient Associations

 

 

The Institut Chiari & Siringomielia & Escoliosis de Barcelona Completes 10 Years of Excellence in Patient Care

Since 2008, the ICSEB team has looked after patients from 61 countries, offering a worldwide unique treatment based on more than 40 years of experience.
On 12 June 2008, the doors of the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) headquarters opened for the first time to the public. The opening ceremony, even though it only seemed to be a starting point, was actually also the culmination of an intense medical and scientific work that had started in the seventies led by Dr. Miguel B. Royo-Salvador, ICSEB’s Director and Founder.

At the beginning of his investigation, Dr. Royo focused on the cause of idiopathic Syringomyelia, followed by that of the Arnold-Chiari Syndrome Type I and, later, the cause of idiopathic Scoliosis. He reached the conclusion that these three conditions, together with other associated ones, share a common point: the cause. According to scientific criteria, the origin of these conditions is an abnormal tension of a ligament that is called Filum terminale and that joins the end of the spinal cord with the lower end of the spine (the first vertebrae of the coccyx). That tension then causes traction on the spinal cord and the entire nervous system of the patient, what causes an important part of the signs and symptoms that characterise these conditions.

Patient testimonial - Maria do Socorro

Cícera dos Santos tells the story of her sister, Maria do Socorro, diagnosed with Arnold-Chiari Syndrome Type I six years ago and operated by means of suboccipital craniotomy (SOC, decompression surgery) four years ago. After the surgery, the patient coninued to get worse: intensification of the pain, breathing difficulty, loss of strength in the upper and lower extremities and many other symptoms. Due to the deterioration of her clinic, she had to start using a wheelchair to move around since August 2017. In addition, Maria do Socorro lost her voice (*) in April of last year. For this reasons it is her sister, Cícera, who is telling her story in this video.

Cícera explains that, after the craniotomy, her sister had started investigating about her pathology on the Internet and that she had found the ICSEB and it was like seeing the light at the end of the tunnel. From that moment, both of them started a big group effort to make the trip to Barcelona viable.

New Quality Management Award

Award Ceremony

Past Friday, 16 March 2018, at Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB)’s main offices, Ms. Eva Subirá Jiménez, Director of AENOR Catalunya (Spanish Association for Standardization and Certification), officially delivered the Quality Management System Certification based on the UNE-EN ISO 9001:2015 standard*, for the following activities:

• Research, diagnosis and treatment of Filum Disease
• Diagnosis and treatment of neurosurgical diseases

Video Clips from a young patient's progression during the first post-op month

Today we would like to share yet another wonderful patient story. Rafael, a young patient affected by the Neuro-Cranio-Vertebral Syndrome, Filum Disease with an intramedullary cyst (idiopathic Syringomyelia) had to rely on a wheelchair to get around when he arrived at the Institut Chiari & Siringomielia & Escoliosis de Barcelona for his first consultation.

After receiving the confirmation that he was a candidate for the Filum System® health method, he underwent the minimally invasive surgical procedure that is part of this method (the sectioning of teh filum terminale).

In this video you can follow his post-op course during the first weeks after the procedure with short clips recorded by his family and at the Institute.

Here in Barcelona we are very happy for Rafael and his family and very grateful to be able to share these images. We wish him the best for his recovery and rehabilitation and hope to continue seeing these great results.

Filum System® Patient testimonials

Many of the patients who have been diagnosed with the Arnold-Chiari Syndrome, idiopathic Syringomyelia, idiopathic Scoliosis and/or other associated conditions, who elected the Filum System® health method as their treatment of choice, show great kindness and generosity in sharing their experiences in written and video accounts for other patients in similar situations to consider and to raise awareness around the globe. 

Meet some of these greathearted individuals and find out about their stories.

Nicolas is today eight year old boy who underwent Sectioning of the Filum terminale procedure at a very young age, with only three years. His parents describe how they first felt about the diagnosis and travelling abroad for treatment and share MR imaging from check ups over the years. The most recent MRI reading indicates: ”currently an obvious decrease of the small hydro-syringomyelic cavity between C6and T1 can is observed”.

Read the full account and see the imaging here. 

Foramen Magnum Decompression in Arnold-Chiari Syndrome Type I and Idiopathic Syringomyelia

Almost a year ago now, Dr. Miguel B. Royo-Salvador, MD, PhD, Director of the Institut Chiari & Siringomielia & Escoliosis de Barcelona and President of the Chiari & Scoliosis  & Syringomyelia Foundation, published a bibliographic review on the surgical technique of the foramen magnum decompression in two of the conditions this blog is mainly concerned with, the Arnold-Chiari Syndrome Type I and idiopathic Syringomyelia in the online edition of the Rare Disease Report. Today we would like to introduce this text here on the blog, hoping that you will find it of interest.

He discusses the existen debate in the medical world on making the accurate diagnosis and the existence of different types of the Arnold-Chiari Syndrome and the different treatment approaches for this condition and for the often associated idiopathic Syringomyelia. He analyzes what is currently the standard treatment, the foramen magnum decompression, with regards to the associated risks and complications compared to the course of the conditions themselves.