Info on Arnold-Chiari I, Idiopathic Syringomyelia, and Idiopathic Scoliosis: Causes and Insights

        ICSEB implements new measures to guarantee safe medical care due to COVID-19 The new measures come according to the extraordinary actions to restrict mobility and social contact established by the different national and international health authorities, together with the indications of the Management of the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB). New and reinforced safety, prevention and hygiene conditions have been implemented to guarantee the protection of our patients’ and staff’s health, as well as public health. We provide medical care to patients from different parts of the world at ICSEB, and we have the obligation to inform each of them of the new measures to be taken into account to guarantee their safety and reduce the risk of transmission of COVID-19. Our administrative team, made up of contact personnel who communicate in more than 16 languages, provides all the pertinent information to schedule m...

Today, 28 February 2019, the 12 th edition of Rare Disease Day is celebrated worldwide. This year’s theme revolves around “ bridging health and social care ”. AI.SAC.SI.SCO. (Associazione Internazionale Sindrome d’Arnold-Chiari, Siringomielia e Scoliosi – Arnold-Chiari Syndrome, Idiopathic Syringomyelia and Idiopathic Scoliosis International Association ): ·    Supports the Chiari & Scoliosis & Syringomyelia Foundation , which promotes the development of scientific research projects; ·    Bears the logo of the Institut Chiari & Siringomielia & Escoliosis de Barcelona ( ICSEB) , as its members are patients who underwent the sectioning of the Filum Terminale according to the Filum System ® health method . This protocolized method has been designed for the diagnosis, treatment and care of patients with conditions that are considered to be rare, mainly the Arnold-Chiari Syndrome Type I, Idiopathic Syringomyelia and all c...

We are grateful to share yet another patient story with you today. ICSEB patient Elizabeth from Philadelphia tells us how for a long time she was receiving diagnoses related to anxiety, depression and fibromyalgia before being diagnosed with Syringomyelia in 2015. Hear more from her in this video, where she explains how she found the Institut Chiari & Syringomyelia & Scoliosis of Barcelona and how the treatment helped her situation.  

This patient travelled from the United States of America to Spain for treatment at the Institut Chiari & Siringomielia & Escoliosis de Barcelona for treatment according to the Filum System® . The minimally invasive Sectioning of the filum terminale was applied in September 2016 for her diagnosis Neuro-Cranio-Vertebral Syndrome, Filum Disease , Arnold-Chiari Syndrome Type I , idiopathic Syringomyelia and idiopathic Scoliosis . Now, a little more than two years after the procedure, she generously shares her experience with the recovery process. Thank you, Patricia! "It has been over 2 years since my surger y. I wanted to wait a long time to give feedback. This is my experience.

Dr Royo-Salvador ’s theory involves the important discovery of the cause for Scoliosis, which had been considered as being “ idiopathic ”, as to say “without known cause”, up to the 1990ies.  Thanks to his etiological explication we now know that Scoliosis can be a clinical manifestation involving an abnormal traction of the spinal cord caused by an excessively tense filum terminale; it is an expression of a Neuro-Cranio-Vertebral Syndrome and/or Filum Disease. (“ Siringomielia, escoliosis y malformación de Arnold-Chiari idiopática. Etiología común ”, Rev Neurol. 1996 Aug; Volume 24, Nº 132; 937 – 959 Dr Royo-Salvador MB).

Many of the patients who have been diagnosed with the Arnold-Chiari Syndrome, idiopathic Syringomyelia, idiopathic Scoliosis and/or other associated conditions, who elected the Filum System® health method as their treatment of choice, show great kindness and generosity in sharing their experiences in written and video accounts for other patients in similar situations to consider and to raise awareness around the globe.  Meet some of these greathearted individuals and find out about their stories. Nicolas is today eight year old boy who underwent Sectioning of the Filum terminale procedure at a very young age, with only three years. His parents describe how they first felt about the diagnosis and travelling abroad for treatment and share MR imaging from check ups over the years. The most recent MRI reading indicates: ”currently an obvious decrease of the small hydro-syringomyelic cavity between C6and T1 can is observed”. Read the full account and see the ...

With the occasion of the release of the renewed Chiari & Scoliosis & Syringomyelia Foundation website, we would like to share this letter from the organization's president Dr. Miguel B. Royo-Salvador. My research quest initiated in the mid-seventies, it focused mainly on the cause of idiopathic Syringomyelia, followed by that of the Arnold-Chiari Syndrome Type I and later, on that of idiopathic Scoliosis. I reached the conclusion that the origin of these conditions, and that of many other associated ones, was an abnormal traction of the spinal cord brought about by a congenitally tenser than usual filum terminale.    I laid the theoretical foundations for a new treatment for these pathologies by means of the surgical sectioning of the Filum Terminale with my doctoral thesis “Contribution to the Etiology of Syringomyelia” (1992). The outcome was the constitution of the health method Filum System ® , a protocolised system designed for the diagnosis and ...

C. Merló (left) and Chiari patient E. Tarquini (right) French patient Emmanuelle Tarquini is on an important date in March, the “Women’s Month”. On the morning of the 19 th , she and her teammate, Cécilia Merló, left from harbour of Barcelona for Morocco, where they are taking part in the 27 th edition of the Rallye Aïcha des Gazelles , the only off-road competition worldwide exclusively for female competitors. In order to participate, Tarquini has had to face a much bigger challenge than riding in a 4×4 jeep for 2500 kilometres through the Moroccan desert. Her great test has been to overcome the difficulties caused by the Arnold-Chiari I Syndrome, that was bringing about insufferable headaches, also neck pain and paresthesias in her right body half.

At the Institut Chiari & Siringomielia & Escoliosis de Barcelona we are very aware that for our patients it is important to be able to express their concerns as freely as possible. Since its foundation, a team of international patient care was built in order to support our medical team in communicating with patients of any language or nationality. More on the topic of cultural mediation in this Blog post here . Today we want to introduce you to our collegue Nina Piorkowska. Polish speaking patients can count on their new contact person since July 2016 to look after them from the first email contact, to the first consultation in person, the surgical treatment and during all of the post-operative follow up process, acting as a bridge between the patients and the medical specialists of the Institut Chiari. 

Observations on idiopathic Scoliosis based on a work presented by Gioia Luè , psychologist, at the 8th CSSf Meeting in Mâcon, France, in 2014.    Patients with scoliosis, in the 12 to 18 age group, talk to us and express their daily life problems and disappointments due to this disease. The delicacy of their relationship with their changing bodies during adolescence is well known. If to this precarious balance a misalignment of the vertebral column is added, provoking an incorrect posture that is less attractive and requires certain special care, it is readily apparent that the difficulties can go from being physical to social and psychological.

Since June 2015, the Institut Chiari & Siringomielia & Escoliosis de Barcelona counts on the experience of Dr Horia Salca Calín. He is the new member of the medical-surgical team of ICSEB, a neurosurgeon trained in all conventional techniques of neurosurgery and is accredited for the implementation of the Filum System ® Surgery method . Also, he is the part of the Department of Research and Development of the Institut.   He graduated in Medicine and Surgery in 1990 from the University of Medicine and Pharmacy (UMF) of Târgu Mureș and specialized in neurosurgery in 1996 from UMF, Bucharest in Romania.            Dr Salca worked in university hospitals with high intensity care activity in Bucharest and Constanza. He did his Specialty Fellowship in Amsterdam (Netherlands) and London (UK) in 1995 and 1996 respectively and achieved the Advanced Specialty Research Diploma (Diplôme d’études avancées de specializati...

The Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) is happy to announce that during the past month of May 2015, the Spanish Innovation Certification Agency (ACIE) and ENAC have certified our project “ Research, development and application of the diagnosis and treatment of the new Filum Disease ” as Research and Development (R&D).

The Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) is a highly specialised private centre that is concerned with offering advanced solutions on medical and neurosurgical level for brain and spine diseases. The Institut first comes into existence in Barcelona, Spain, in 2007, and is born out of the need of Miguel B. Royo Salvador, MD PhD, director and founder of the “Institut Neurologic de Barcelona”, for a space where he could dedicate himself to the three pathologies from that the centre takes its name: Arnold Chiari Syndrome I, Idiopathic Syringomyelia and Idiopathic Scoliosis.