Monday 26 March 2018

Filum System® Patient testimonials

Many of the patients who have been diagnosed with the Arnold-Chiari Syndrome, idiopathic Syringomyelia, idiopathic Scoliosis and/or other associated conditions, who elected the Filum System® health method as their treatment of choice, show great kindness and generosity in sharing their experiences in written and video accounts for other patients in similar situations to consider and to raise awareness around the globe. 

Meet some of these greathearted individuals and find out about their stories.

Nicolas is today eight year old boy who underwent Sectioning of the Filum terminale procedure at a very young age, with only three years. His parents describe how they first felt about the diagnosis and travelling abroad for treatment and share MR imaging from check ups over the years. The most recent MRI reading indicates: ”currently an obvious decrease of the small hydro-syringomyelic cavity between C6and T1 can is observed”.

Read the full account and see the imaging here
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Amelie is a young patient affected by the Neuro-Cranio-Vertebral Syndrome, Filum Disease, the Arnold-Chiari Syndrome Type I, idiopathic Syringomyelia and Scoliosis who underwent the Sectioning of the Filum terminale surgery according to the Filum System® in July 2017.  She was so kind as to let the Institut Chiari & Siringomielia & Escoliosis de Barcelona staff film her on the day previous to her surgery, on the day after the procedure and during her check up appointment one month post-op.

 

Filmed on: 24 July 2017
Surgery date: 25 July 2017

The patient had trouble moving the lower extremities.
She lacked strength in her legs and used a wheelchair.

One day after the surgery.
Filmed on: 26 July 2017

The patient recovered strength in her legs and was able to walk by herself.

One month after post-op.
Filmed on: 01 September 2017

Her gait improved and her movement was securer and quicker.


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In this short video (English subtitles), Vilmar Bloemer transmits encouragement to individuals affected by the Arnold-Chiari Type I Syndrome, idiopathic Syringomyelia and Scoliosis and invites physicians to get involved.

 

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An immense "thank you" to the patients for letting us be part of their experiences.

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