Monday 26 March 2018

Filum System® Patient testimonials

Many of the patients who have been diagnosed with the Arnold-Chiari Syndrome, idiopathic Syringomyelia, idiopathic Scoliosis and/or other associated conditions, who elected the Filum System® health method as their treatment of choice, show great kindness and generosity in sharing their experiences in written and video accounts for other patients in similar situations to consider and to raise awareness around the globe. 

Meet some of these greathearted individuals and find out about their stories.

Nicolas is today eight year old boy who underwent Sectioning of the Filum terminale procedure at a very young age, with only three years. His parents describe how they first felt about the diagnosis and travelling abroad for treatment and share MR imaging from check ups over the years. The most recent MRI reading indicates: ”currently an obvious decrease of the small hydro-syringomyelic cavity between C6and T1 can is observed”.

Read the full account and see the imaging here

Thursday 22 March 2018

Foramen Magnum Decompression in Arnold-Chiari Syndrome Type I and Idiopathic Syringomyelia

Almost a year ago now, Dr. Miguel B. Royo-Salvador, MD, PhD, Director of the Institut Chiari & Siringomielia & Escoliosis de Barcelona and President of the Chiari & Scoliosis  & Syringomyelia Foundation, published a bibliographic review on the surgical technique of the foramen magnum decompression in two of the conditions this blog is mainly concerned with, the Arnold-Chiari Syndrome Type I and idiopathic Syringomyelia in the online edition of the Rare Disease Report. Today we would like to introduce this text here on the blog, hoping that you will find it of interest.

He discusses the existen debate in the medical world on making the accurate diagnosis and the existence of different types of the Arnold-Chiari Syndrome and the different treatment approaches for this condition and for the often associated idiopathic Syringomyelia. He analyzes what is currently the standard treatment, the foramen magnum decompression, with regards to the associated risks and complications compared to the course of the conditions themselves.