Info on Arnold-Chiari I, Idiopathic Syringomyelia, and Idiopathic Scoliosis: Causes and Insights

The Institut Chiari & Siringomielia y Escoliosis de Barcelona establishes Casa ICSEB to accommodate not only our care activity for patients from all around the world, but also the work of our R&D department. People stop us on the street, they congratulate us. Neighbours ask about the construction site on Paseo de Manuel Girona and Calle Dr. Ferrán . Some recognise us because we are from the area; others do not even know who we are. However, everyone is happy with the change happening at the Manuel Girona 32 address. This informative note is for them and everyone who is curious to learn a little more about the building and those who will be occupying it. Casa ICSEB The emblematic Noucentista building from the 1920s is located in the Pedralbes neighbourhood, in the current Les Corts district, on the southwest corner of the intersection of Paseo Manuel Girona and Dr. Ferrán Street. Classified as an asset of urban interest, it is part of the historical heritage of the Catalan...

  On September 28, the International Arnold-Chiari Syndrome Day is celebrated, with the main objective of generating social awareness about this disease that is still little known; which generates a series of problems for people who suffer from it. Unfortunately, most of the patients we attend at Institut Chiari & Siringomyelia & Escoliosis de Barcelona, ​​apart from the pain they suffer, report having spent a long time trying to obtain a correct diagnosis and suffer from a lack of understanding regarding their symptoms. -both by health professionals and family members-. For this reason, we want to join this day to show all our support to the patients and relatives who live with this pathology -which is much more frequent than it seems-, providing the most valuable tool: information about this syndrome, based on more than 40 years of research by Dr. Royo Salvador and his team. This link explains the different types of Arnold-Chiari Syndrome, the symptoms and the treatments ...

We are delighted to share the good news with you: thanks to the good evolution of the pandemic, the increase in the vaccinated population -including ICSEB staff-, the decrease in travel restrictions by the Spanish government, and the decrease in the rates of infection and mortality; from now on,   our Institute will again receive patients without the need of carrying out a PCR-test or any analytical test related with Covid-19 to access the medical visits on our premises . We will continue to apply all the necessary precautions to ensure your protection:  the use of masks, hand hygiene, and interpersonal distance. We hope that with the new possibilities of international travel and the progressive reduction of the restrictions previously imposed due to healthcare measures, many patients who were waiting for this moment will finally be able to travel to our center so that our team of specialists can help them as soon as possible. You can now book your medical appointments!

        ICSEB implements new measures to guarantee safe medical care due to COVID-19 The new measures come according to the extraordinary actions to restrict mobility and social contact established by the different national and international health authorities, together with the indications of the Management of the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB). New and reinforced safety, prevention and hygiene conditions have been implemented to guarantee the protection of our patients’ and staff’s health, as well as public health. We provide medical care to patients from different parts of the world at ICSEB, and we have the obligation to inform each of them of the new measures to be taken into account to guarantee their safety and reduce the risk of transmission of COVID-19. Our administrative team, made up of contact personnel who communicate in more than 16 languages, provides all the pertinent information to schedule m...

There is a multitude of information circulating in the professional domain as well as in communication channels that, if on the one hand it offers different perspectives, on the other, it can complicate understanding and decision making. Medical and health professionals have a responsibility commitment to the sick, to transfer information as clear and exhaustive as possible, to allow them to make the most appropriate decisions about their own health. The Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) promotes education and the dissemination of knowledge, being aware that all this affects the patients’ decisions about her/his health and safety . It is on that account that we have prepared this open letter.  We would like to alert about the possible risks of relying on professionals who do not act with due prudence when offering a surgical treatment that they claim is the same as the one practiced by our team. As a matter of fact, they do not ha...

Today, 28 February 2019, the 12 th edition of Rare Disease Day is celebrated worldwide. This year’s theme revolves around “ bridging health and social care ”. AI.SAC.SI.SCO. (Associazione Internazionale Sindrome d’Arnold-Chiari, Siringomielia e Scoliosi – Arnold-Chiari Syndrome, Idiopathic Syringomyelia and Idiopathic Scoliosis International Association ): ·    Supports the Chiari & Scoliosis & Syringomyelia Foundation , which promotes the development of scientific research projects; ·    Bears the logo of the Institut Chiari & Siringomielia & Escoliosis de Barcelona ( ICSEB) , as its members are patients who underwent the sectioning of the Filum Terminale according to the Filum System ® health method . This protocolized method has been designed for the diagnosis, treatment and care of patients with conditions that are considered to be rare, mainly the Arnold-Chiari Syndrome Type I, Idiopathic Syringomyelia and all c...