Info on Arnold-Chiari I, Idiopathic Syringomyelia, and Idiopathic Scoliosis: Causes and Insights

Cícera dos Santos tells the story of her sister, Maria do Socorro, diagnosed with Arnold-Chiari Syndrome Type I six years ago and operated by means of suboccipital craniotomy (SOC, decompression surgery) four years ago. After the surgery, the patient coninued to get worse: intensification of the pain, breathing difficulty, loss of strength in the upper and lower extremities and many other symptoms. Due to the deterioration of her clinic, she had to start using a wheelchair to move around since August 2017. In addition, Maria do Socorro lost her voice (*) in April of last year. For this reasons it is her sister, Cícera, who is telling her story in this video. Cícera explains that, after the craniotomy, her sister had started investigating about her pathology on the Internet and that she had found the ICSEB and it was like seeing the light at the end of the tunnel. From that moment, both of them started a big group effort to make the trip to Barcelona viable. ...

Award Ceremony Past Friday, 16 March 2018, at Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB)’s main offices, Ms. Eva Subirá Jiménez, Director of AENOR Catalunya (Spanish Association for Standardization and Certification), officially delivered the Quality Management System Certification based on the UNE-EN ISO 9001:2015 standard*, for the following activities: Research, diagnosis and treatment of Filum Disease Diagnosis and treatment of neurosurgical diseases

Today we would like to share yet another wonderful patient story. Rafael, a young patient affected by the Neuro-Cranio-Vertebral Syndrome, Filum Disease with an intramedullary cyst (idiopathic Syringomyelia) had to rely on a wheelchair to get around when he arrived at the Institut Chiari & Siringomielia & Escoliosis de Barcelona for his first consultation. After receiving the confirmation that he was a candidate for the Filum System® health method, he underwent the minimally invasive surgical procedure that is part of this method (the sectioning of teh filum terminale). In this video you can follow his post-op course during the first weeks after the procedure with short clips recorded by his family and at the Institute. Here in Barcelona we are very happy for Rafael and his family and very grateful to be able to share these images. We wish him the best for his recovery and rehabilitation and hope to continue seeing these great results.

Many of the patients who have been diagnosed with the Arnold-Chiari Syndrome, idiopathic Syringomyelia, idiopathic Scoliosis and/or other associated conditions, who elected the Filum System® health method as their treatment of choice, show great kindness and generosity in sharing their experiences in written and video accounts for other patients in similar situations to consider and to raise awareness around the globe.  Meet some of these greathearted individuals and find out about their stories. Nicolas is today eight year old boy who underwent Sectioning of the Filum terminale procedure at a very young age, with only three years. His parents describe how they first felt about the diagnosis and travelling abroad for treatment and share MR imaging from check ups over the years. The most recent MRI reading indicates: ”currently an obvious decrease of the small hydro-syringomyelic cavity between C6and T1 can is observed”. Read the full account and see the ...

Almost a year ago now, Dr. Miguel B. Royo-Salvador, MD, PhD, Director of the Institut Chiari & Siringomielia & Escoliosis de Barcelona and President of the Chiari & Scoliosis  & Syringomyelia Foundation , published a bibliographic review on the surgical technique of the foramen magnum decompression in two of the conditions this blog is mainly concerned with, the Arnold-Chiari Syndrome Type I and idiopathic Syringomyelia in the online edition of the Rare Disease Report . Today we would like to introduce this text here on the blog, hoping that you will find it of interest. He discusses the existen debate in the medical world on making the accurate diagnosis and the existence of different types of the Arnold-Chiari Syndrome and the different treatment approaches for this condition and for the often associated idiopathic Syringomyelia. He analyzes what is currently the standard treatment, the foramen magnum decompression, with regards to the associated risks and ...

With the occasion of the release of the renewed Chiari & Scoliosis & Syringomyelia Foundation website, we would like to share this letter from the organization's president Dr. Miguel B. Royo-Salvador. My research quest initiated in the mid-seventies, it focused mainly on the cause of idiopathic Syringomyelia, followed by that of the Arnold-Chiari Syndrome Type I and later, on that of idiopathic Scoliosis. I reached the conclusion that the origin of these conditions, and that of many other associated ones, was an abnormal traction of the spinal cord brought about by a congenitally tenser than usual filum terminale.    I laid the theoretical foundations for a new treatment for these pathologies by means of the surgical sectioning of the Filum Terminale with my doctoral thesis “Contribution to the Etiology of Syringomyelia” (1992). The outcome was the constitution of the health method Filum System ® , a protocolised system designed for the diagnosis and ...

C. Merló (left) and Chiari patient E. Tarquini (right) French patient Emmanuelle Tarquini is on an important date in March, the “Women’s Month”. On the morning of the 19 th , she and her teammate, Cécilia Merló, left from harbour of Barcelona for Morocco, where they are taking part in the 27 th edition of the Rallye Aïcha des Gazelles , the only off-road competition worldwide exclusively for female competitors. In order to participate, Tarquini has had to face a much bigger challenge than riding in a 4×4 jeep for 2500 kilometres through the Moroccan desert. Her great test has been to overcome the difficulties caused by the Arnold-Chiari I Syndrome, that was bringing about insufferable headaches, also neck pain and paresthesias in her right body half.