The struggle of French patients for the recognition of the Filum System® treatment.

Today we are sharing some news from the Communications Department of the Institut Chiari & Siringomielia &  de Barcelona with information regarding the activism of patients in France to fight for awareness of diseases they are affected by, recognition of the indicated treatment and reimboursement of the treatment cost by the public services.

How much time is necessary to accept the solution to Idiopathic Syringomyelia?

This is the question a mother asks herself when she has to deal over and over again the scepticism of the public administration and the lack of a positive reply from those offices. 

A French newspaper echoes this clamour with an interview with the Blache family, who brings along proof in form of the cases of mother and daughter. 

The path of science is complicated, but it is surprising to realize how hundreds and hundreds of patients speak in favour of the technique that was developed by the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB),

by sharing no more or less than their personal experiences, and even so it seems as if this is not enough. 

How much clinical prove will be necessary for the outcomes, that point to a promising treatment, to be at least considered?

Find the article here.

FRENCH PATIENTS STRUGGLE FOR THE RECOGNITION OF THE SURGICAL TECHNIQUE.

 

 Beyond the borders, we can find hundreds of successfully treated patients who face in solidarity and with individual intelligence Public Offices and Institutions that live anchored, with an argument that cannot be proofed wrong: their personal experience.   

A few days ago, another French newspaper wondered what was necessary for a surgical technique that is being applied successfully since more than a decade to be taken into consideration. (Le Dauphiné, 19 January 2015)

Mrs Sandrine Roux is a clear example of this tireless struggle. Today she even tells us about Montpellier neurosurgeon’s surprise when he confirmed the patient’s notable improvement after undergoing the procedure with Dr Miguel B. Royo’s team at the Institut Chiari & Siringomielia & Escoliosis de Barcelona.

This is the article published in: L’INDEPENDANT on 23 January 2015