Info on Arnold-Chiari I, Idiopathic Syringomyelia, and Idiopathic Scoliosis: Causes and Insights

These days, on 23 and 24 February 2017, the first edition of the “ Filum System ® Medical – Course for mental health professionals” is taking place in Barcelona. This course has been organized by the Filum Academy Barcelona ® in collaboration with Institut Chiari & Siringomielia & Escoliosis de Barcelona . The attendeesare mental health professionals who are interested in the “ Filum Disease ” and the psychological changes caused by this condition, as well as the role of psychotherapy in the post-sectioning of the filum terminale rehabilitation process.

At the Institut Chiari & Siringomielia & Escoliosis de Barcelona we are very aware that for our patients it is important to be able to express their concerns as freely as possible. Since its foundation, a team of international patient care was built in order to support our medical team in communicating with patients of any language or nationality. More on the topic of cultural mediation in this Blog post here . Today we want to introduce you to our collegue Nina Piorkowska. Polish speaking patients can count on their new contact person since July 2016 to look after them from the first email contact, to the first consultation in person, the surgical treatment and during all of the post-operative follow up process, acting as a bridge between the patients and the medical specialists of the Institut Chiari. 

Today we would like to share with share with you a video testimonial from a patient diagnosed with Neuro-Cranio-Vertebral Syndrome. Filum Disease. Descent of the cerebellar tonsils (DCT. Arnold-Chiari Syndrome I), recorded twenty days after her surgery according to the Filum System® . Our lovely patient is from Brazil and tells us her experience in Portuguese, but you can find a summary in English below.    Surgery date: June 2016   Miss De Oliveira tells us that she was not able top lay and run like other children when she was little because she suffered from pain and breathing difficulties. Her situation got worse in her teens as the pain increased in the head and body, together with fatigue and tremors in legs and eyes. There was a deterioration of the symptoms at the age of seventeen and she saw many physicians of different specialties over the next two years and received different diagnoses, from sinusitis to...

The Institut Chiari & Siringomielia & Escoliosis de Barcelona team wishes you happy holidays and a great start into the New Year 2017! We hope to welcome you as readers again in the next year.  https://vimeo.com/195433856

We will be addressing some recurring questions among our patients in today's post.    What should you do when your doctor indicates a surgery? Surgical indication must be the result of a detailed study of the case, which takes into consideration all factors, like possible diagnosis and treatments, age, quality of life, expectations, etc. When is the application of Filum System® (FS ® ) surgical protocol indicated for the Filum Disease? As soon as possible after the disease has been diagnosed, to eliminate its cause and prevent the pathology from developing further. The diagnosis Filum Disease means that there is a progressive physical and especially a neurological deterioration ongoing.

Over the years the ICSEB team has continued to grow, to thereby attend the increase in inquiries from patients from all around the world . This last year Anoop Tiwari joined the Institut, who is our contact person for patients who speak Hindi or English. Among his work responsibilities we can highlight the translations of medical documents into Hindi and English, as well as IT support for projects related to publishing and communication of contents. He has a lot of experience in people assistance and care in an international environment, so he has integrated very well into our multicultural team .     On personal level he shares with his adoptive culture the values of family and friends, besides his natural tendency to care for others, something that he enriches with one of his passions: cooking, offering creative combinations of flavours of India with those of the rest of the world.

We are pleased to announce that the director of Institut Chiari & Siringomielia & Escoliosis de Barcelona , Dr. Royo Salvador, has been invited to collaborate with the association Worldwide Syringomyelia & Chiari Task Force and to join the medical board of this association that is based in the United States. It aims to educate professionals and patients about the diagnoses that included in the organization’s name. At the same time, it is promoting a study of these diseases at international level under the auspices of the Food and Drug Administration (FDA) and the National Organization for Rare Disorders in North America. We are happy to share this collaboration and we hope it will be bring fruitful and lasting results for the benefit of patients throughout the world. The invitation letter sent to Dr. Royo by the association: http://institutchiaribcn.com/commons//pdf/communication-letters/Letter-WSCTF-ICSEB.pdf