Info on Arnold-Chiari I, Idiopathic Syringomyelia, and Idiopathic Scoliosis: Causes and Insights

The Institut Chiari & Siringomielia & Escoliosis de Barcelona team wishes you happy holidays and a great start into the New Year 2017! We hope to welcome you as readers again in the next year.  https://vimeo.com/195433856

We will be addressing some recurring questions among our patients in today's post.    What should you do when your doctor indicates a surgery? Surgical indication must be the result of a detailed study of the case, which takes into consideration all factors, like possible diagnosis and treatments, age, quality of life, expectations, etc. When is the application of Filum System® (FS ® ) surgical protocol indicated for the Filum Disease? As soon as possible after the disease has been diagnosed, to eliminate its cause and prevent the pathology from developing further. The diagnosis Filum Disease means that there is a progressive physical and especially a neurological deterioration ongoing.

Over the years the ICSEB team has continued to grow, to thereby attend the increase in inquiries from patients from all around the world . This last year Anoop Tiwari joined the Institut, who is our contact person for patients who speak Hindi or English. Among his work responsibilities we can highlight the translations of medical documents into Hindi and English, as well as IT support for projects related to publishing and communication of contents. He has a lot of experience in people assistance and care in an international environment, so he has integrated very well into our multicultural team .     On personal level he shares with his adoptive culture the values of family and friends, besides his natural tendency to care for others, something that he enriches with one of his passions: cooking, offering creative combinations of flavours of India with those of the rest of the world.

We are pleased to announce that the director of Institut Chiari & Siringomielia & Escoliosis de Barcelona , Dr. Royo Salvador, has been invited to collaborate with the association Worldwide Syringomyelia & Chiari Task Force and to join the medical board of this association that is based in the United States. It aims to educate professionals and patients about the diagnoses that included in the organization’s name. At the same time, it is promoting a study of these diseases at international level under the auspices of the Food and Drug Administration (FDA) and the National Organization for Rare Disorders in North America. We are happy to share this collaboration and we hope it will be bring fruitful and lasting results for the benefit of patients throughout the world. The invitation letter sent to Dr. Royo by the association: http://institutchiaribcn.com/commons//pdf/communication-letters/Letter-WSCTF-ICSEB.pdf

Observations on idiopathic Scoliosis based on a work presented by Gioia Luè , psychologist, at the 8th CSSf Meeting in Mâcon, France, in 2014.    Patients with scoliosis, in the 12 to 18 age group, talk to us and express their daily life problems and disappointments due to this disease. The delicacy of their relationship with their changing bodies during adolescence is well known. If to this precarious balance a misalignment of the vertebral column is added, provoking an incorrect posture that is less attractive and requires certain special care, it is readily apparent that the difficulties can go from being physical to social and psychological.

Won’t my spinal cord be moving around on the inside after cutting the filum? The sectioning of the filum terminale ligament involves the elimination of the anomalous traction that acts on the patient’s spinal cord and nervous system. Once the surgery is performed, the nervous system is liberated, but no tissue changes its position. Only in some cases we detect that the conus medullaris and the descended cerebellar tonsils, over time and very slowly (normally years after the surgery), may rise by some millimetres.

Since June 2015, the Institut Chiari & Siringomielia & Escoliosis de Barcelona counts on the experience of Dr Horia Salca Calín. He is the new member of the medical-surgical team of ICSEB, a neurosurgeon trained in all conventional techniques of neurosurgery and is accredited for the implementation of the Filum System ® Surgery method . Also, he is the part of the Department of Research and Development of the Institut.   He graduated in Medicine and Surgery in 1990 from the University of Medicine and Pharmacy (UMF) of Târgu Mureș and specialized in neurosurgery in 1996 from UMF, Bucharest in Romania.            Dr Salca worked in university hospitals with high intensity care activity in Bucharest and Constanza. He did his Specialty Fellowship in Amsterdam (Netherlands) and London (UK) in 1995 and 1996 respectively and achieved the Advanced Specialty Research Diploma (Diplôme d’études avancées de specializati...