Rare Disease Day 2023
On the occasion of World Rare Disease Day , 28 February each year, we emphasize that Arnold-Chiari syndrome I and syringomyelia are not uncommon to our experts because of their incidence and number in the population. However, they are “orphan” because they have other typical features of this type of disease. The Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) follows the Dr. Miguel B. Royo Salvador’s theory of caudal traction. This theory considers that what causes the cerebellar tonsils to descend Arnold-Chiari Syndrome type I and intramedullary cavities to develop in idiopathic syringomyelia, is a consequence of the abnormal traction of the Filum terminale ligament. This ligament is congenitally tenser than normal, affecting the entire central nervous system. Our center offers patients the Filum System® approach, a unique and proprietary method of diagnosing and treating these diseases, which includes minimally invasive surgical intervention...