Rare Disease Day - 28 February 2019 - Association AI.SAC.SI.SCO
Today, 28 February 2019, the 12 th edition of Rare Disease Day is celebrated worldwide. This year’s theme revolves around “ bridging health and social care ”. AI.SAC.SI.SCO. (Associazione Internazionale Sindrome d’Arnold-Chiari, Siringomielia e Scoliosi – Arnold-Chiari Syndrome, Idiopathic Syringomyelia and Idiopathic Scoliosis International Association ): · Supports the Chiari & Scoliosis & Syringomyelia Foundation , which promotes the development of scientific research projects; · Bears the logo of the Institut Chiari & Siringomielia & Escoliosis de Barcelona ( ICSEB) , as its members are patients who underwent the sectioning of the Filum Terminale according to the Filum System ® health method . This protocolized method has been designed for the diagnosis, treatment and care of patients with conditions that are considered to be rare, mainly the Arnold-Chiari Syndrome Type I, Idiopathic Syringomyelia and all c...